Thursday, December 31, 2009
And another thing...
I hate that my husband has this thing sticking out of his chest.
I can't explain how horrifying it is to see him walking around with tubes sticking out of his chest. The chemo goes in them. they pull blood from them (which is icky and disturbing and makes me ill to even think about, much less witness). Occasionally they require 'flushing.'
Argh. Fuck cancer
Another end-of-year list
1. Burkitt’s Lymphoma . Seriously, fuck you. My husband is one of 10 Americans in his age group with this disease right now. 10. Yes, he will be cured. Yes we will come through this 'stronger,' but we were already strong enough so fuck you cancer.
2. The phrase "you will come through this stronger." FUCK THAT.
3. Resting the starters in the middle of the 3rd quarter when you have a lead and it's a home game AND the other team needs to win to potentially play you in the playoffs. Fuck you Jim Caldwell.
4. Crash and Amelie. They just piss me off.
5. People that ask questions that they don't want to know the answers to.
6. People that ask questions they already know the answers to.
7. People that congregate in doorways, the tops of escalators or stairs, and anywhere else that impedes other people. I don't care if you're on vacation, stop being so fucking thoughtless.
8. The San Diego Chargers.
9. My insurance companies. Both of them. All you do is take my money and make my life harder. Fuck you.
10. Anyone who gets righteous about any of the following:
a. not owning a television
b. not drinking caffeine
c. not watching sports
d. not believing in God
e. not eating meat
f. not smoking
Memo to the world: The things you DON'T do, for whatever reason, don't make you special. The things you jump into in this life matter. The things you retreat from are largely personal, and the rest of us don't give a shit how unique you feel for discarding them.
11. Nurses who wear perfume on the cancer ward. Way to introduce a group of nauseous people to your whorish scent and selfish disposition. You're TOTALLY in the right line of work.
12. People that start shit with you and are then surprised when you fight back. If you don't want a fight, then don't fuck with me. It's not complicated, and there are plenty of people in the world who are willing to be doormats for a bully. I'm not your girl. Ass.
13. Those fucking Swiffer commercials that imply that women have romantic relationships with their cleaning implements. (cuz apparently only women clean) That's just so fucking off that I don't even know how to respond. If you looked at our society through the lens of our commercials, would it be even remotely familiar?
14. People that think Obama is Jesus incarnate. He's not.
15. People that think Obama betrayed progressives. You don't listen well.
16. People that think Obama wasn't born here. You're fucking paranoid, and likely a complete fucking racist.
17. People that think Obama is a socialist. You're fucking stupid.
18. UPDATE. I hate that I got an email from these guys because an 11-year-old is pregnant and too scared to finger her abuser. The state won't fund the termination of her pregnancy without a police report. I hate this ugly scary world.
There, now I feel a little better.
I am, in fact, an angry girl
Too quiet it seems. I’m sensing a few themes in my life right now. One is that everyone else seems just as hypersensitive to things as I am, so I find myself wishing I’d held my tongue, even (especially) when I don’t mean any harm. The other thing I’m finding is that more than a few people think that I’m closed off. There are lots of people fighting to offer me a hand in the things that I’ve been going through, and they think that I’m not open to receiving help, or letting my guard down. They’re right, of course, but people seem to be taking it personally.
I am private (ironic to say this in a blog post, I know). I am guarded, even with people I love. I don’t share easily, I don’t open up easily. These are things that are hard for me. I’ve been hurt before, too many times to count. Even when I tear down my own walls and just express what I’m feeling, I typically don’t like what I get back. It’s a hard, cruel world out there, and turtles have shells for a reason. I like my shell. It suits me. I’m comfortable there. There’s room for my husband, my dog, the occasional friend, and not much else. It doesn’t mean I don’t love all of these people (and I acknowledge that this is a nice problem to have), it just means that I can’t lay myself bare for them or anyone else. Not without significant emotional turmoil. I don’t have the luxury of having that kind of turmoil right now. My job is to be a pillar to my husband and my home. I need to hold them up. I can be a fucking mess later. I can work on my relationships later. Right now everything in my life is on hold. This is an expensive choice I’m making here, I realize that. I’m going to lose people. I’m going to hurt some feelings. There are people who aren’t going to understand. I don’t see another way though. I can’t talk too much about how I feel right now, or what I’m going through, because I just keep feeling it. It’s brand new every time I say something to someone. Doing that feels like skinning myself raw just so people know I trust them. I can’t afford to be that kind of mess. My family can’t afford that kind of mess.
So here’s the status update for all concerned parties:
1. Life is shit right now. We’re skating on the razor’s edge financially (a tree fell in the backyard, across three yards, and crushed a neighbor’s car. Insurance refused to pay to haul it away. Don’t know if they paid for the cars, but I had to dip into my retirement to get the tree out of there, as it was in a precarious position and could have caused more damage.
2. Hubby’s treatment is progressing, and we’ve had no real nasty surprises, but being poisoned once every few weeks is wearing on his mood, and it’s a fight to get him to check in to the hospital anymore.
3. I am just completely drained. If it’s not the tree or the cancer, it’s the job (which I have very little investment in right now, given the circumstances) or illnesses in my family. I feel like I’m being pulled apart. I can’t be anywhere I want to be for any amount of time that’s worthwhile, and even if I could, I can’t marshal the focus to be a worthwhile addition to any of these circumstances.
4. Christmas was fine, if you like that sort of thing, and I generally don’t.
5. I’m getting sick. This is a natural response to all this stress, I know. However, my husband can’t get (another) infection, so I’m banished to sleeping in my tv room until I’m better. So even when he comes home (tonight), I’m isolated. It’s really fucking lonely, and the loneliness is compounded by the fact that I can’t reach out to anyone on my own fucking terms because I’m not doing enough weeping and wailing.
Tuesday, November 17, 2009
What's a girl to do?
I want my life back. I'll never have it....
It wasn't easy to blog.
Saturday, October 31, 2009
What i'm reading
Okay, people have been raving about this book for some time. I'm was wary of reading it because of something I like to call the Amelie Effect. When that movie came out, everyone and their mother was over the moon about it. "So clever," "So inventive," "You should see it!" So I did. Snooze.
So I've been wary of this kind of hype ever since. The Pulitzer Prize piqued my interest, so I gave it a go.
The book follows a family of Dominicans living in both Santo Domingo and New York. The book is full of Spanish phrases, science fiction references, and Dominican history. This book is like music. I felt like some of it just went gliding through my brain. I can't remember being so charmed by a book that was so sad. I'm still thinking about what the mongoose means. I highly recommend it.
Week 8 Football
Texans over Bills
Ravens over Broncos
Bears over Browns
Cowboys over Seahawks
Rams over Lions
Colts over 49ers
Jets over Miami
Giants over Eagles (westbrook is going to be missed this week, I think)
Chargers over Raiders
Titans over Jags
Packers over Vikings
Cardinals over Panthers
Saints over Falcons
Let's see if I can crack the 8-5 record.
Monday, October 26, 2009
On blessings
My favorite high school teacher (who would NOT appreciate my potty mouth on this blog) was once run over by a bus. He was in a great deal of pain, he drifted in and out of consciousness, and at one point he came too and told his wife he was hungry. She offered him the apple from her purse, the only food she had in the midst of the emergency room anxiety. He told me that eating that apple was the most enjoyable feeling of his life, and that nothing that he's ever eaten has tasted as good as that apple on the edge of his life.
I think that story is beautiful, but until now, I've never understood it (which was a blessing, may you never 'understand' it either). In the midst of the most painful situation of our lives, I've seen such kindness from every facet of our lives, I don't have words. My hubby's coworkers donated six weeks of leave to help him through chemo, friends have shown up with food and done grocery shopping and research and even loaned us a vacation house so we could hang out before all the madness started. Our church has been a constant source of support (one our ministers calls John about once a week. For a congregation our size, I think that's amazing.) I've cried on many shoulders, held many hands (including the feisty grandma of the bride last weekend) and have found myself propped up by dozens of hands (and not in a creepy Labyrinth way). For every sharp pain to my guy that cancer has delivered, I've had a basket of apples to choose from. That basket seems to be bottomless.
That's why I say we're blessed.
Saturday, October 24, 2009
What I don't talk about when you ask me how I am
Person X: How are you? Really?
Me: (Insert random platitude here)
Person X: I'm here for you if you need me. Please know that.
Me: Thank you so much. That means a lot to me.
Person X: (Insert cancer anecdote here)
Me: (Insert new platitude)
Person X: (Tell a story about how I need to take care of myself in order to better take care of hubby)
Me: (nod sagely)
Person X: (give me a story about why hubby means so much to him or her. No bullshit here, he's deeply and profoundly loved, and quite worthy of it all.)
Me: (Insert new bullshit platitude)
(hugging)
Here's what I think when all of this is going on:
How are you, they say, and my mind just buzzes and buzzes and buzzes about money, and how I have to work, and how I wish I could walk the dog normally, and how could one take-home medication be 5k, and how could insurance refuse it, and why the fuck can't I get a swine flu shot, and jesus where is my testing kit for my diabetes because I can't remember if I've taken a fucking pill this week and I can't fuck up my blood sugar on top of everything else and fuck fuck fuck?
I'm here for you, they say, and I think, take this bullshit cliche, don't make me talk about how I feel, about the death of the life I knew, about what babymaking means for us now, about what anything means for us now... take my cliche, swallow it like I mean it. I can't start and not stop. You can't volunteer and not take me over for a lifetime. I'm stuck. I need to talk about this forever or not at all. I need both. I need you to hear me all day everyday or never again. take the cliche. It's your unsticking. Don't be stuck with me. I can't get you out, and it's not fair to keep you here, even though I need you. I need you desperately, because I'm a bundle of need. Run. Run. Run away. Don't run. Save me. Nevermind. Run. I'm going to stop listening now, because you're about to make me cry, and when I start, I can't stop...
That's about how it goes.
Wednesday, October 21, 2009
The last 8 days
The post is bleak, so here's a puppy picture to brighten it up.
So hubby started chemo last Tuesday. There was a four-day hospital stay, two spinal taps, some (possibly excessive) steroid injections, a wedding, and some serious crabbiness. The first bout was rough... and it's slowly getting rougher. He's already lost 20lbs (He's a big guy, so it's not so bad) and his eyebrows are falling out. This is all going so fast...
Here are some fun (or odd) facts about chemo:
1. your can sweat it out of your pores for up to 48 hours
2. during chemo, you should courtesy flush (it's not just the pores!)
3. when they inject chemo into your spinal fluid, you get nasty migraines that only go away when you lie flat....for 12 hours at a time.
4. If you're still sweating out the chemo, caregivers should wear gloves when changing your bed linens
I remember the part of my life where none of this would have occurred to me.... it was a nice part.
I went to football practice tonight! It was so nice to see the ladies, and one of my fellow blocking backs told me about her kid's chemo (he was 2 at the time, and it was 14 months...) and offered me all the help and support I needed. I watched them run plays for awhile, played with their kids, and all had a good night.
I feel like crap. I feel exhausted. We're so unlucky.
But we're really, really blessed.
Week 7 Football
I think so far this season there are a few reliable teams:
1. My Colts, reliably awesome
2. The Pats, but there’s some defensive issues that will come into play the next time they have a real opponent
3. Atlanta. How about that young QB?
4. The Chargers, reliably mediocre, and soon to be overhyped
5. Brown, reliably sucky
6. The Bills, also sucky
7. Ditto the Rams (see more about the Rams below)
8. Looks like the Bucs are going on this list too. I confess I don’t know much about them (I have an NFC blindside, I confess)
9. Oakland. That QB sucks. I’m sorry; they need to back to the drawing board. Poor guy has all the necessary components, but he can’t put them together to save his damn life.
Before I get to my picks for the coming week, I want to say something about the hubbub around Rush Limbaugh as a possible minority owner for the crappy, crappy, Rams. Let me preface this statement by saying that I find the man’s viewpoints deplorable, and I thought that his statements about McNabb were both appalling, and completely within my expectations for him. All that aside:
1. Journalists have an obligation to thoroughly research their information. WIKIPEDIA doesn’t cut it as a primary source. Of all the hideous things the man has said, why must you go the fiction route, CNN? That reporter should be fired.
2. With all due respect to Jim Irsay (a fine man who represents a fine football team) and Roger Goodell, this is still America. Being a race-baiting bigot doesn’t preclude you from being an entrepreneur. Racism is not illegal. It’s wrong. Those are two different issues with two different consequences. There are certainly players that wouldn’t want to play for Rush. I don’t blame them. That would be a problem. I think he would have been a bit of a liability for the Rams brand, but probably not more so than their record. That would be a problem. However, this could have been a teaching moment for Limbaugh. I don’t see anything so scary about black people (being one of them) that we can’t put Limbaugh in their proximity and push some real change. Certainly not the conservative black millionaires that the NFL kicks out. At this point, we’ve made Limbaugh and underdog, which unfortunately means that his microphone is, for the moment a megaphone. Bad move fellow liberals.
My picks:
Chargers over Chiefs, though I couldn’t tell you why
Packers over Browns
49ers over Texans…in a squeaker
Colts over Rams (Go Horse!)
Steelers over Vikings, because I finally found someone I hate more than Ben Roethlisberger
Pats over Bucs
Jets over Raiders
Panthers over Bills. The Bills give me indigestion
Bears over Bengals in a shocking game
I’m gonna say Falcons over Cowboys… I may regret it but I think so.
Saints annihilate the Dolphins
Giants, playing angry, kill the Cards
If the Eagles don’t beat the ‘skins, then they aren’t the team I thought they were.
OOH! I'm going to visit my team at practice tonight! I can't wait. More about that later.
What I'm Reading
Christopher Moore is best known for the book Lamb: The Gospel According to Biff, Christ’s Childhood Pal. I haven’t read that yet, so I don’t have much to say about it (I think I’m reading that after my next book) other than this: the topic doesn’t strike me as a stretch for this author, and I’m betting it’s pretty good.
This book is a sequel to Bloodsucking Fiends, and follows the adventures of vampires set loose on San Francisco. I loved Fiends, it really captured the best of Moore’s skills, creating lovingly-created wacky subcultures that find themselves interconnected through loneliness and necessity (the book contains one of the funniest marriage proposals I’ve ever read).
That being said, there’s a passage in the book about how sleeping vampires don’t wake up during the day, and how a mortal considers dressing his vampire girlfriend up in a cheerleader outfit and sexually assaulting her. The book doesn’t treat the idea as assault (though that’s what it is), and our meek little beta male seems to think better of it.
And then, it pops up in You Suck. Except now, it’s actually happened, and the two characters discuss this egregious breach of trust as if it were a social faux pas. So now I hate the book. There were some interesting elements, it overlaps with another Moore book I enjoy, and I finished (because I rarely put a book down forever), but rape is not okay. It’s not something that happens because an awkward young man that’s new to relationships doesn’t know the score. It’s something that happens because of fucking rapists. I don’t understand why that’s so fucking confusing for people, and I’m fresh out of understanding on the topic. So, thumbs down, and a break from Christopher Moore for the moment.
Other favorites by this author: Bloodsucking Fiends
What I’m reading next: The Brief Wondrous Life of Oscar Wao by Junot Diaz. I want to see what all the fuss is about.
Wednesday, October 14, 2009
This Post is better suited for Monday morning
I hope everyone enjoyed their long weekend. I was light on posting because my in-laws came to town to help us out. Hubby started chemo yesterday, and it’s good to have someone here to advocate for him full time, while I do annoying things like work. My father-in-law went home, but my mother-in-law is here for a month. I’m really glad to have some help!
There’s something about the city that I live in and fall. It comes in at night, and summer beats it back by early afternoon. The mornings are quite crisp these days, but by mid-afternoon everyone sheds their hoodies. It looks like an accelerated version of the shift from winter to spring. I kinda dig it, to be honest. It’s a small distraction from the sheer speed of my life these days. It’s nice.
So I finished the book I’m going to report on this week, I just need to collect my thoughts about a troubling trend I’m seeing in these books, and I’ll send all of my insights straight to you. I’m out of pocket this weekend, so I’ll try to load you up on good stuff before Friday when I disappear again.
Friday, October 9, 2009
Links for Friday
http://jezebel.com/5376642/dr-phils-teen-oral-sex-show-is-infuriating
When the women of Jezebel are on, they are ON.
http://www.google.com/hostednews/ap/article/ALeqM5gEpCqGB1apmy7fj_k0ARdkEdw06gD9B554IO0
One more time people: restricting the clothing choices of women is not the same as standing on the side of women’s liberation. In fact, it is the opposite (are you listening France? Don’t look away).
Week 5 football
My picks:
Baltimore beats Cincy, in a squeaker
I don’t know if Cincy is great, but they are playing with a lot of heart these days, I have to admire that.
Carolina beats Washington, badly
Dan Snyder is cyanide
Cleveland beats Buffalo
I have no idea how this game goes. If I had the guts for my first week of internet picks, I’d say a tie.
Detroit beats Pittsburgh
The Steelers look like garbage this year. Detroit is full of heart and has nothing to lose.
Dallas beats KC
Minnesota beats St. Louis
Giants beat Oakland
Philly beats Tampa Bay
Finally we come to a good game!
Atlanta beats San Fran, but at the buzzer, and there’s probably a safety. (The single best indicator of a crazy football game is the safety. Bar none.)
Houston beats Arizona
I’m not too confident on this one, and I’d prefer that Houston went back to being the Houston of before, but what can I say? They look amazing.
Denver beats New England
Just because I’m a hater.
Jacksonville beats Seattle
Someone has to win this one.
Indy annihilates the Titans
Because the Titans suck, and because I bleed blue.
The Jets beat Miami in the lowest-rated Monday night game of the season.
I will be curious to see how Braylon Edwards adjusts to his new team. I have one suggestion for him: Act like someone raised you when you go out in public.
How we got here
These motherfuckers put a security guard between me and my husband and they left him in the waiting room for 7.5 hours. If not for text messaging, I wouldn’t have known what was going on. I called everyone at the hospital I could find, screaming, yelling, and threatening to sue. I called his doctor and begged her to intercede (she declined. Bitch.). By the time they finally saw him, the pain was so bad that they put him on morphine.
After that things got worse.
After 8 days of hell, full of dipshit doctors, nonanswers, a steadfast refusal to give him his blood pressure medication, STILL MORE YELLING, an appendectomy, and a few nasty days trying to fight off an infection, and they sent him home. (Great nurses though.)
Two weeks later they got the results of the biopsy of his appendix, and they told us he had Burkitt’s lymphoma, a form of cancer rarely seen in the Western world.
Now he has tubes sticking out of his chest. It’s hard for me to wrap my arms around him in the surprise hugs that have been the hallmark of our relationship. He’s shaved his arms because he’s tired of losing hair from all the IVs. He’s covered in stubble, makes it hard to curl up to him (his whole body is fairly stabby). He’s more irritable than ever. He starts chemo next week. Our lives are upside-down.
Fucking cancer.
Obama reaction
As a Democrat who was horrified by the discourse of the past eight years, and weary from being told that dissent was the opposite of patriotism, tired of hearing “you go to war with the leader you have,” and frankly disgusted by the general use of jingoism as a substitution for nuanced thought, I was happy to have a thinker running for office. I was delighted to see a man who reasoned and pondered and picked things apart. He may not always be right, but his process indicated to me that he reached his decisions the right way, a way that allowed for the recognition of bad ideas. I’m not sure he’s seen all of his promise through on this front, but I’m proud of him and happy to have him nonetheless.
I just don’t understand why he got a Nobel Prize.
Seriously? I mean Seriously?
I promise not to just post links without comment very often, but the President won a Nobel Peace Prize for Diplomacy? I have to go to work. I will elaborate on this later.
What I'm reading
Fluke: Or, I know Why the Winged Whale Sings by Christopher Moore
Christopher Moore is best known for the book Lamb: The Gospel According to Biff, Christ’s Childhood Pal. I haven’t read that yet, so I don’t have much to say about it (I think I’m reading that after my next book) other than this: the topic doesn’t strike me as a stretch for this author, and I’m betting it’s pretty good.
Fluke follows the adventures of a whale scientist and his crew as they try to discover why whales sing. There’s a parallel to a biblical story, and a fair amount of magic, which made it easier to get through the science (and faux-science).
The exploration of the “beta male” is an ongoing theme in Moore’s work. (A Dirty Job has a great definition of the beta male.) His male characters are typically brave, kind, and eventually heroic, but they all begin the books obsessed with their own inadequacies. Moore is skillful at making these strange neurotic heroes compelling. Also, Moore has a knack for describing (or inventing) subcultures that are engaging and entertaining.
I probably shouldn’t try to write another one of these at 7 in the morning.
Other favorites by this author: Bloodsucking Fiends
What I’m reading next: You Suck: A Love Story by Christopher Moore
Thursday, October 8, 2009
An introduction, of sorts
I'm not going to write a blog about fucking cancer.
At least not entirely.
I will touch on it, as it is currently touching me. I have a lot to say, and I'm rusty. This blog may suck for a while. It may be ENTIRELY about cancer for a while... It may be about anything BUT cancer for a while. The only thing I can guarantee is that there will be lots and lots of swearing.
That's all for now.